Janssen is dedicated to providing support for patients with PAH.
We have made a range of resources available online to provide helpful information on living with PAH.
If you would like hard copies of any of these resources please contact your healthcare team.
Factsheets on managing symptoms
Pulmonary Arterial Hypertension (PAH)
Understanding PAH, symptoms and treatment options
Managing Fluid Retention at Home
A guide for how to manage excess fluid retention at home
Managing Breathlessness in Pulmonary Arterial Hypertension
Things you can do to help manage your breathlessness and gain control of your breathing
Why should I get regular risk assessments?
Understanding the 'NT-proBNP' blood test and why getting regular risk assessments are important if you have PAH
Advice on living with PAH
Lung Foundation PAH booklet
A simple and in-depth guide for patients living with PAH
PAH Patient Charter
Outlines the standards of holistic care that people living with PAH should expect to receive
Understanding and Managing Scleroderma
A booklet for patients and their families to understand living with scleroderma
Information on support groups
Community Support Groups
Information on Australian community support groups
LFA Peer Support Group Flyer
Positively Amazing Hope; a peer support group for people living with PAH
Key questions to ask your healthcare team
PH Question Guide
10 questions to ask your healthcare team to optimise your treatment plan
A GP’s guide to PAH
How much does your GP know about PAH? An overview of PAH to give to your GP or healthcare professional
